I wrote the last blog in the midst of a sinus infection, a lack of sleep and a distinct lack of sunshine so it was a little bit on the grumpy side! Although the sun is yet to appear, the house is full of happiness and things are looking up!
We’ve had a couple of big appointments this week and for once, they went exactly as I hoped and I got really positive outcomes for Thurston. His Physiotherapy review showed that he is hitting all the targets that were set for him including a tiny little jump!! He even stepped over a series of miniature hurdles which was pretty impressive, maybe he will make the Olympics after all! Although he is making fantastic progress, he is getting pain in his right foot and has less of an arch there than in his left, so we are going back to the Podiatrist to see if anything can be done. The Physiotherapist has set up a meeting to hand him over to the Community Physio who will be around if he needs anything during his school life. Also, he is going to join a Pre school physio/speech therapy group over the Summer to try and prepare him for school. I couldn’t have asked for more really.
Today came the dreaded Feeding Clinic review. I have been taking Thurston to the Feeding Clinic since he was a baby and I find it really hard-going. The professionals there are very unapproachable and all talk amongst themselves, and honestly I don’t think they do a lot for us. Today, they discharged us into the care of the hospital Dietician until Thurston reaches the 9th percentile and is off of the specialist formula. He is still very underweight and lacking in nutrients, but only really needs a Dietician’s help, so I was ecstatic to hear that we would never be going back to Feeding Clinic. I probably skipped out of there, I was so happy! Since they had ‘cleverly’ scheduled this appointment at 12pm, Thurston missed his lunch so we took him to McDonald’s (which is recommended by the Dietician for the high fat & calorie content!). The little sneak swiped my pot of ketchup and dipped a chip. I watched him out of the corner of my eye so I didn’t spook him and he picked up the chip, span it round then ate it from dry end to ketchuppy end! Thurston is very anti-sticky food so I hope this is a step in the right direction, and he got a balloon as a reward!
This isn’t the 1st food revelation we had this week. I made a batch of vegan Blueberry Muffins for the family and left the plate out in the kitchen for any passing cake-lovers. Having seen Zeke take a muffin, Thurston decided to be brave and grab one too. He just walked around with it at first, and I thought he was only interested because of the little London bus cake cases my friend had given me. After a few minutes though, he took a big bite and went on to eat a third of one! I’m hoping this will lead the way to more cakes and treats. I’d better get experimenting in the kitchen. Next up, muesli bars!
As usual, Thurston is full of surprises and has recently switched from his favourite Cars 2 DVD to watching marathons of Peppa Pig episodes! I can’t say I enjoy Peppa Pig, but I am grateful for the change of subject. I must say though I am pleased with some of the adorable songs that Peppa has taught Thurston and enjoy being sung to while I do the housework! I thought that the songs were impressive until I realised that he had picked up some new vocabulary from Peppa Pig thanks to George Pig and his love of dinosaurs. Having planned a trip to the Zoo for the bank holiday weekend, I asked Thurston what animals we would see and his reply was “Tyrannosaurus Rex, Brontosaurus and Triceratops”!! I haven’t stopped making him say it ever since!
I wondered if he would be disappointed by the Zoo given that he was expecting to see Jurassic Park, but he was brilliant all day and didn’t cry once. We met some friends at the Zoo who were new to Thurston but he was very friendly and chatty and probably a bit of a show-off. He had great fun splashing in the muddy puddles and running after the peacocks. Just when I thought he was going to be difficult, we went into the Reptile House and saw lizards, crocodiles, tortoises and frogs. All of which, luckily, Thurston assumed to be dinosaurs. So according to him, when you ask what he saw at the Zoo, he saw “Tyrannosaurus Rex, Brontosaurus and Triceratops”.
My other sons are sat next to me as I type and have asked to be included in this blog. How could I say no?! So here are their achievements for the week. Zeke has been a superstar at school and was asked to stand up in assembly to show everybody his homemade game “Muppet Monopoly”. As for Louis, he single-handedly researched and planned our route to the Zoo and was a fantastic navigator.
I’m very lucky to have such weird and wonderful boys
Thanks for reading